As a parent of a child with PFFD, I know all about the questions, fears, anxiety, and sadness that hit when you find out that your lovely new baby has a birth defect. Will she ever walk? Will she dance at her prom? Will she play sports? Did we do something wrong? Will this affect our next child? Where do we get more info?
This VSG will be a collection of stories from parents of PFFD children. Come read their stories, share their sorrows and joys, and hopefully, leave with a better understanding of PFFD and a brighter outlook for the future.
| Title | Author | Comments |
| Welcome To Holland | Emily Perl Kingsley | Don't be confused by the title. A touching story about what it's like to have a child with a birth defect. |
| Things To Remember | Mary Williams Clark | A doctor's advice for families of children with amputations. |
| The Best Right Answer | Melissa Arnold | A wonderful story from the mother of a child being treated with limb lengthening. |
| Puddles of Tears | Melissa Arnold | Feeling sad, scared, angry or tired? We've all been there. Read how Melissa deals with the feelings and emotions. |
Disclaimer: These articles were submitted by PFFDvsg readers. We do not check the accuracy of any facts presented, nor do we necessarily agree or disagree with the opinions expressed. The opinions expressed are those of the author, and any comments should be directed to the author.
Want to submit your PFFD ideas or comments? Just send us an e-mail at pffdvsg@gmail.com
| Title | Author | Comments |
| Understanding Your Doctor and Your Options | Janice Ward | Janice has probably seen more doctors than anybody else. She offers her thoughts on doctors and treatment options. |
| The Donovan Douglas Collection | Donovan Douglas | Donovan writes lovely short stories about Little Pink Alligators and more. |
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Inch-by-Inch: A Journey Down The Lengthening Road |
Melissa Arnold | Follow along as Adam journeys through the lengthening process. |
| Life with an Ilizarov | Peter Helson | Peter shares some helpful tips on how to survive those tough times with an Ilizarov. |
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Alabama |
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| Name | Location | Birth | Uni/Bi | Aitken | Treatment |
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| Rebeccah's Story | AL | 1987 | Uni | Class ? | Lengthening |
California |
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| Name | Location | Birth | Uni/Bi | Aitken | Treatment |
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Suzannette's Amazing, Yet Unfinished, Story |
CA | 1987 | Uni | Class ? | Lengthening |
| Uncommon Valor | CA | 1984 | Uni | Class ? | Dr. Moseley's P.F.F. Device |
Florida |
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| Name | Location | Birth | Uni/Bi | Aitken | Treatment |
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| Jonathan's Story | FL | 1994 | Uni | Class ? | Lengthening |
Michigan |
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| Name | Location | Birth | Uni/Bi | Aitken | Treatment |
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| Jamie's Page | MI | 1995 | Uni | Class ? | Van Nes Rotation |
New York |
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| Name | Location | Birth | Uni/Bi | Aitken | Treatment |
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| Caleb's Story | NY | 1997 | Uni | Class ? | Symes/Knee fusion/AK prosthesis |
| Marc's Story | NY | 1972 | Uni | Class C | Symes/Knee fusion/AK prosthesis |
North Carolina |
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| Name | Location | Birth | Uni/Bi | Aitken | Treatment |
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Jesse's Story |
NC | 1995 | Uni | Class ? | Lengthening |
Ohio |
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| Name | Location | Birth | Uni/Bi | Aitken | Treatment |
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| Jennifer's Story | OH | 1993 | Uni | Class C | Symes/Knee fusion/AK prosthesis |
Oregon |
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| Name | Location | Birth | Uni/Bi | Aitken | Treatment |
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| Roxana's Story | OR | 1996 | Uni | Class ? | Lengthening |
South Dakota |
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| Name | Location | Birth | Uni/Bi | Aitken | Treatment |
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Ben's Story |
SD | 1989 | Uni | Class ? | Lengthening |
Virginia |
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| Name | Location | Birth | Uni/Bi | Aitken | Treatment |
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| Danae's Story | VA | 1990 | Uni | Class ? | Lengthening |
| Trevor's Story | VA | 1998 | Uni | ? | Moseley P.F.F. Device |
Outside USA |
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| Name | Location | Birth | Uni/Bi | Aitken | Treatment |
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| Holly's Story | Canada | 1987 | Uni | Class A | Van Nes Rotation |
| Rebecca's Story | Canada | 1977 | Uni | Class ? | Lengthening |
| Katia's Story | Spain | 1995 | Uni | Class ? | Lengthening |
| Neville's Story | South Africa | 1987 | Uni | Hip Fusion/Prosthesis | |
| Hello From Ireland | Ireland | 1971 | Bi | Class ? | ? |
| Cherie's Story | ? | 1972 | Bi | Class ? | None |
| Caroline's Story | Australia | 1971 | Uni | Class C | Dr. Moseley's P.F.F. Device |
| Andrew's Plight | ? | 1999 | Uni | ? | Dr. Moseley's P.F.F. Device |
| Dad's Story | Australia | 1921 | Uni | Extension Prosthesis | |
| Milena's Story | ? | 1991 | Uni | ? | Shoe Lift |
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